What went well for you? Today or this week. No matter how small, let’s celebrate the good things in our lives!

I’ll try to post this regularly.

My disability got boosted to the next level which means more money and it will be easier to organise transportation should I need to go anywhere. And I think applications for future stuff will get easier.

Take that, lady who wrote I could wash my hair because I could lift my hand above my head once!

  • misk@sopuli.xyzEnglish
    3·
    4 days ago

    You should start the disability stuff as early as possible because the time when you started will be the time when you’ll start getting money. At least in Germany that’s the case. And all this stuff will take a long time and many difficult confusing applications. If you can you should get some help.

    I live in Poland so I don’t think I’m entitled to too much so monetary concerns are not that big part of my consideration. I earn well but not well enough to pay for more expensive biologics out of pocket, hence trying to qualify for those through the hospital.

    As far as I know the process for applying for disability is not very long but I’ve heard many stories similar to yours. I worry that when I get to be evaluated for disability I’ll be in 3 days of random remission and they’ll get offended that I’m even there.

    It has been a difficult and strange journey. For me and my wife. We’re still both coming to terms with the fact that this is now our life. I’m starting to call myself disabled. Although technically what I’m getting is not “disability” but “care”. So I can still get a disability ID which I think will not give me more money, but makes me eligible for discounts and parking and stuff.

    Silver lining is that we had partners at the time. I’m still pissed at the world in general because I was supposed to be the one taking care of her.

    I still find myself forgetting the whole extent of my condition. Was watching a stream of a woman in a wheelchair. And she was saying that basically clueless doctors landed her in the chair. And I literally thought to myself: “Kind of like with me, luckily I didn’t end up needing a wheelchair.” While lying in bed, unable to use a wheelchair like her and unable to play a video game like her and unable to hold long conversations like her.

    I wanted to write more but lack the energy.

    It’s scary how fast it takes to get used to things. Take care! I’m the opposite so until the fatigue kicks in from the pain I take my mind off it by being hyperactive on Lemmy.